ReCONNET
ERN ReCONNET...
Description
The main aim of ERN ReCONNET is to improve the management of rare connective tissue and musculo-skeletal diseases (rCTDs) across the EU. The main objectives of ERN ReCONNET are: • Realisation of the potential of European cooperation among rCTDs stake...
General Design
- Type
- Registry
- Cohort type
- Clinical cohort
- Data collection type
- Retrospective, Prospective
- Design
- Longitudinal
- Design description
- Patients with rare connective tissue and musculo-skeletal diseases
- Start/End data collection
- 2018 (ongoing)
Population
- Countries
- France, Germany, Greece, Italy, Netherlands (the), Czechia, Poland, Portugal, Denmark, Belgium, Finland, Romania, Slovenia, Sweden, Spain
- Population age groups
- All ages
- Inclusion criteria
- Hospital patient inclusion criterion
Organisations
Lead organisations
Additional organisations
- A.S.L. Turin 2 - Hub O. Giovanni BoscoItalyhttps://www.aslcittaditorino.it/
Data provider, Data access provider
- Amsterdam UMC Location Vrije Universiteit AmsterdamNetherlands (the)https://www.vumc.nl/
Data provider, Data access provider
- AO San Camillo Forlanini - RomeItalyhttp://www.scamilloforlanini.rm.it/
Data provider, Data access provider
- AOU Meyer - FlorenceItalyhttps://www.meyer.it/cura-e-assistenza/attivita-sanitarie/87-reumatologia
Data provider, Data access provider
- AOU Ospedali Riuniti "Umberto I - G.M. Lancisi-G. Salesi"Italyhttps://www.ospedaliriuniti.marche.it/portale/
Data provider, Data access provider
- AOU Policlinico Umberto I - RomeItalyhttps://www.policlinicoumberto1.it
Data provider, Data access provider
- Assistance Publique-Hôpitaux de Paris, Hôpital BicêtreFrancehttps://www.aphp.fr/service/service-04-010
Data provider, Data access provider
- Assistance Publique-Hôpitaux de Paris, Hôpital CochinFrancehttp://www.maladiesautoimmunes-cochin.org/
Data provider, Data access provider
- Assistance Publique-Hôpitaux de Paris, Hôpital Pitié-SalpétrièreFrancehttp://pitiesalpetriere.aphp.fr/lupus/
Data provider, Data access provider
- Assistance Publique-Hôpitaux de Paris, Hôpital Raymond PoincaréFrancehttps://www.aphp.fr/service/service-51-068
Data provider, Data access provider
- ASST Orthopaedics Traumatology Centre Gaetano Pini - CTO MilanItalyhttps://www.asst-pini-cto.it/
Data provider, Data access provider
- Azienda Ospedaliero-Universitaria di ModenaItalyhttps://www.aou.mo.it/home.html
Data provider, Data access provider
- Centro Hospitalar de Lisboa Central, EPEPortugalhttp://www.chlc.min-saude.pt/
Data provider, Data access provider
- Centro Hospitalar de Lisboa Norte, EPEPortugalhttp://www.chln.pt/index.php/as-nossas-especialidades/medicina/reumatologia
Data provider, Data access provider
- Charité Universitätsmedizin BerlinGermanyhttps://rheumatologie.charite.de/
Data provider, Data access provider
- Consortium: AOU Careggi, FlorenceItalyhttps://www.aou-careggi.toscana.it
Data provider, Data access provider
- Consortium: County Emergency Clinical HospitalRomaniahttps://scjucluj.ro
Data provider, Data access provider
- Consortium: Helsinki University Hospital (HUS)Finlandhttps://www2.helsinki.fi/en/researchgroups/helsinki-rheumatic-diseases-inflammation-group
Data provider, Data access provider
- Consortium: Hôpitaux Universitaires de StrasbourgFrancehttp://www.chru-strasbourg.fr/Les-centres-de-reference/Maladies-auto-immunes-rares
Data provider, Data access provider
- Consortium: Hospital Universitario 12 de OctubreSpainhttps://www.comunidad.madrid/hospital/12octubre/
Data provider, Data access provider
- Consortium: Karolinska University HospitalSwedenhttps://www.karolinska.se/
Data provider, Data access provider
- Consortium: Sant Joan de Déu HospitalSpainhttps://www.clinicbarcelona.org/
Data provider, Data access provider
- Consortium: University Hospital of PadovaItalyhttps://www.aopd.veneto.it/Reumatologia
Data provider, Data access provider
- Consortium: University Hospitals Saint-LucBelgiumhttps://www.saintluc.be/
Data provider, Data access provider
- Copenhagen University Hospital, RigshospitaletDenmarkhttps://www.rigshospitalet.dk/
Data provider, Data access provider
- Division of Immunorheumatology - AOU San Giovanni di Dio e Ruggi d'Aragona - University of SalernoItalyhttp://www.sangiovannieruggi.it
Data provider, Data access provider
- Erasmus MC: University Medical Center RotterdamNetherlands (the)http://www.erasmusmc.nl/immunologie
Data provider, Data access provider
- Foundation IRCCS CA'Granda Ospedale Maggiore polyclinic - MilanItalyhttps://www.policlinico.mi.it/reparti/33/medicina-immunologia-e-allergologia
Data provider, Data access provider
- Foundation IRCCS Polyclinic San Matteo, PaviaItalyhttp://www.sanmatteo.org/
Data provider, Data access provider
- Foundation IRCCS-Casa Sollievo della SofferenzaItalyhttps://www.operapadrepio.it/it/
Data provider, Data access provider
- Hospital Universitari Vall d'HebronSpainhttp://www.vallhebron.com
Data provider, Data access provider
- IRCCS Ospedale Policlinico San Martino – GenovaItalyhttp://www.ospedalesanmartino.it/
Data provider, Data access provider
- Leiden University Medical CenterNetherlands (the)https://www.lumc.nl
Data provider, Data access provider
- Narodowy Instytut Geriatrii, Reumatologii i Rehabilitacji/National Institute of Geriatrics, Rheumatology and Rehabilitation (NIGRiR)Polandhttps://spartanska.pl/
Data provider, Data access provider
- Radboud University Medical Centre NijmegenNetherlands (the)https://www.radboudumc.nl/
Data provider, Data access provider
- San Raffaele hospital - MilanItalyhttps://malattierare.hsr.it/it/index.html
Data provider, Data access provider
- Universitätsklinikum DüsseldorfGermanyhttps://www.uniklinik-duesseldorf.de/
Data provider, Data access provider
- Universitätsklinikum ErlangenGermanyhttps://www.uk-erlangen.de/medizin-3/
Data provider, Data access provider
- University Medical Center UtrechtNetherlands (the)https://www.umcutrecht.nl
Data provider, Data access provider
- University Medical Centre GroningenNetherlands (the)https://www.umcg.nl/
Data provider, Data access provider
- University of Rome Tor Vergata Department of Respiratory MedicineItalyhttps://www.ptvonline.it/
Data provider, Data access provider
Dataset variables
Datasets
Datasets and their description
| Name | Description | |
|---|---|---|
No results for current selection |
Dataset variables
Dataset variables and their description
| variable | Dataset | |
|---|---|---|
No results for current selection |
Networks
Part of networks...
Access conditions
- Data access conditions
- disease specific research
- Data use conditions
- project specific restriction
- institution specific restriction
- Data access fee
- false
- Release type
- Continuous
- Prelinked
- true